Six-year-old Caitlyn Speed was born 12 weeks early with the incurable illness. Within the first few weeks she needed specialist care to save her life as her condition worsened.
Caitlyn didn’t return home for nearly four months after her birth as her condition was so serious. She also required 24-hour oxygen.
Caitlyn’s illness means she struggles to walk unaided for long distances and requires the use of a wheelchair.
The One Stop shop in Catshill, where Caitlyn’s mum works, held a 12-hour charity bike ride in the store last Friday (March 11) and a raffle is also being held to help raise money towards Caitlyn’s wet room.
The raffle prizes so far include giftsets, salon vouchers, a paintball voucher, a hoodie and a caricature drawing for the winner.
Around £1,500 has so far been raised in just two weeks for Caitlyn’s cause but another £8,500 still has to be raised.
Lisa Speed, Caitlyn’s mother said: ‘’It would be brilliant to reach the £10,000 goal, it would mean that Caitlyn could have a better life.”
Caitlyn’s father is also planning on continuing the fund-raising by climbing
If anyone would like to contribute to Caitlyn’s cause go to: www.gofundme.com/zr8xjubm which is her online donation page.